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Publications

Here you can find articles and information from around the globe

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Countries

Here you will find the information per country, and links to websites in your own languages. 

 

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We are devoted to get all the information about the different porphyria's around the world in one place. Including Health Centers and local Porphyria information in your own language. Also we use our strength across the world to fasten processes and we can use each others knowledge and background for making statements to national and global governments. To achieve these aims, we work with the community to provide information about global development, attract the public's attention, and raise funds to organize activities for patients, information weekends and empowerment for global (legal) issues.