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Publications

Here you can find articles and information from around the globe

                         Click here

Countries

Here you will find the information per country, and links to websites in your own languages. 

 

                         Click here

Join IPPN online:

Because of the need for global information, we did not make an global Facebook or Twitter account. For the account in you country, look for an update in the future:

International
   

   
        International Porphyria Patients Network 

 

 

Eurordis RareConnect – Porphyria Community (online) 

 

 

Europe

 

    Belgian EPP Association 

 

    British Porphyria Association 

 

    Finnish Porphyria Support Group 

 

    French Porphyria Association 

 

    German EPP Association 

 

    Netherlands EPP Association 

 

    Norwegian Porphyria Association (NPF) 

 

    Porphyria Association Denmark 

 

    Spanish Porphyria Foundation 

 

    Swiss Porphyria Association 

 

    Swedish Porphyria Association 

 

Asia-Pacific

 

    Porphyria Australia 

 

    SAKURA Friends (Japan) 

 

Americas

 

    American Porphyria Foundation (USA) 

 

    Canadian Association for Porphyria 

 

 

    https://www.facebook.com/porfiria.ABRAPO/

 

    http://www.porfiriamexico.com/

 

    http://www.fecoer.org/la-fundacion-para-las-porfirias-hace-parte-de-fecoer/
    fundacionparalasporfirias@gmail.com

 

Africa

 

    Porphyria South Africa