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Here you can find articles and information from around the globe

                         Click here


Here you will find the information per country, and links to websites in your own languages. 


                         Click here

We will try to have an International Porphyria Patients day on a yearly base.

Also there will be held International Congresses with doctors, professors and pharmaceuticals from around the globe.

2017 - France, Bordeaux                         https://icpp2017.org/

2016 - Rotterdam, Netherlands             (Information will follow)

2015 - ICCP in Dusseldorf, Germany

2014 -                                                          (There was no International meeting)

2013 - Luzern, Switserland

2011- Cardiff, Wales                                  (Not found in the Internet)



In the near future we want to have camps for kids, and other member possibilities where everyone can enjoy there stay, without needing to explain what's wrong with them.