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Publications

Here you can find articles and information from around the globe

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Countries

Here you will find the information per country, and links to websites in your own languages. 

 

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  • Starting the website (February 11, 2016)

After deciding our goals we claimed our domain, selected a logo and formed the website.

  • Keeping the momentum (February 6, 2016)

During a meeting in Rotterdam (Holland), the Chairman of the Swiss Porphyria foundation kept the momentum bij presenting a way to empower all nations. After his presentation different Chairmans of other countries stepped in to form a new board. Mission: Get the world got together and form a new Patient Network to improve help for all patients with Porphyria.